i've just been reading through the Drugs section,

i have an appointment brought forward for me to the 26th January.

i'm not doing that well on Methotrexate ( convinced it's not helping with my sleep pattern ) and Hydroxy. i'm not in a lot of pain but the RA is active.

spoke to my Rheumy Nurse yesterday and she said the next step is Anti-Tnf's, which the Consultant also suggested in December but i had to try Hyroxy to have failed on two.

feeling anxious about it as i was with starting Methotrexate ... but i can't fault the support my Rheumy Department has given me.

also got some leaflets i picked up from the NRAS meeting i went to last September.

no idea what Drug will be adviced yet or if you get the choice.

it seems Humira has been around the longest though.

Suzanne x

P.S. to Rose,

have you started on Humira yet..?

hi Rose,

thanks for the reply ... have posted on your new Laptop Thread as saw that one first.

interesting in what you say about not going onto Anti-TNF's ... an anxious time ahead for me again i think. i have no idea about them yet.

i'll keep you posted after my appointment on the 26th January,

welcome back,

Suzanne x

hi Rose,

fantastic news i really hope they work for you too.

i went for my Appointment this morning, have to back back in one month for second lot of Tests then i'll be going onto Anti-TFN's as well, i've already met the criteria on this first Test ... my Rheumy Nurse thinks it will be Cimzia.

a lot to take in and absorb, feeling tearful like i did at the start of being diagnosed and very tired.

i'll post my own Thread once i know what's what with me.

let us know how you are geting on Rose, everything crossed here for you.

take care,

Suzanne x

That's great news that you will soon be getting the humira Rose.

I hope it works really well for you.

Love, Doreen xx

Hello Ailsa


The delivery of the drugs is Wednesday so I presume I will hear about when the nurse
attending to be within the next week.

Sorry you were so tired but pleased that you do not have the Hospital run to do at the moment.

Rose

Hi Rose
Good luck with the humira and really hope it does the job! Im going to see anti tnf nurse tuesday and have to decide what to take but really havent got a clue! Will follow you with interest! Take care xx

Hi Rose

Great news! Hope they contact you soon and you can get on with the job!

The box for the syringes ... is that the sharps bin? If so you don't need to stick that in the fridge, it can go in any safe place. Mine sits on top of the bathroom cabinet. Blimey an A4 wallet, are they expecting you to take a course in Humira? I got an instruction leaflet, no wallet, no nurse Heyho it looks as though things are improving!

Good luck Rose, I really hope this is the drug for you. Thinking about you, keep us posted

Lyn x

PS Are you coming up to Stratford Upon Avon for the meet up now it's nearer to you? It would be lovely to meet you! x

hi Rose,

well you're on your way,

good luck with it ... i too will be looking forward to hearing how you are getting on,

although it will be another couple of months before i go onto them as have one more session with the Rheumy Nurse first.

really hope this is the one that works for you Rose x

Any word from the nurse yet Rose? Hope you can get started soon. I think my 2nd injection perked me up a bit (so I did loads yesterday and today I have to sit between every job!) Hope you are having a good weekend xx Ailsa

Hi Rose - just wondering if you got any response from the nurse? It does seem ridiculous not to be starting when you have the drugs at the ready, just for the want of a 30 mins appointment!

Sorry to hear that work is being difficult for you. I would have thought they would have to wait for the effects of this new treatment to kick in before they could suggest (or make you feel) that you should step down. make sure you keep a log of everything and speak to your union Rep if there are thinhs that you are unhappy about. Let us know how you ge on XX Ailsa